Tuesday, March 2, 2010

has it really been 6 months already?

jaxon had his 6 month appointment yesterday. at his 4 month appointment he was 22 3/4" long and 13 lbs even. yesterday he was 25" long and 15.2 lbs. he's grown some. i knew some of his sleepers were getting a little short but he's still wearing 3 month sizes haha. he finally made it on the growth charts at 10th percentile and he's still in the 10th percentile for weight as well. so that means 90% of kids his age are bigger than him. he said he looked great other than a few concerns. i had been noticing the last several weeks he really hadn't been trying to roll over or pushing up when he was on his belly. he's no where near trying to sit up. and that started to worry me seeing as how branson had hypotonia of the lower extremities and didn't walk until he was 22 months. after he looked at jaxon he said that he had very low muscle tone. branson had none. he said to try a few things, laying on his belly more, sitting him in the bumbo more and if he still wasn't doing either by his 9 month appointment we would start physical therapy.

no one knows how heartbreaking this is! with both of my children having decreased muscle tone it means that i am a carrier for this issue. but what gene is causing this issue? why is it happening? with this problem comes a series of other issues. it in no way affect their intellect but it affects their speech.

Hypotonia is a medical term used to describe decreased muscle tone (the amount of resistance to movement in a muscle). It is not the same as muscle weakness, although the two conditions can co-exist. Other symptoms of hypotonia include problems with mobility and posture, breathing and speech difficulties, lethargy, ligament and joint laxity, and poor reflexes. Hypotonia does not affect intellect. However, depending on the underlying condition, some children with hypotonia may take longer to develop social, language, and reasoning skills.

this is hard for me to accept. yes everyone says "aww it'll be ok, he'll be fine" because they really don't know what else to say. branson's doctor told me finally after 1 year of intense physical therapy and he was finally walking that she honestly NEVER thought he would walk. his muscles were so floppy and loose that she was very worried. and now that jaxon appears to have the same issue, it's been caught sooner so hopefully we can start working sooner and correct it. but still i worries me that i am obviously the carrier for this "disease". will any future children have this since both of mine now have? will it be worse? some people have small babies, some people have big babies. even at full term i have small babies and my babies seem to require special care and have special needs. it's just how it is. it also makes me question is there something i do while i'm pregnant to make them this way? no one in my family has ever had early babies, problems while pregnant, small babies or babies with issues. why am i the only one? what in my body is genetically making this happen? can it be fixed? will all of my children suffer from this? so many question but so few answers.

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